Food allergy Quality of life study - 4 October 2019
The Allergy and Immunology department at the Children’s Hospital at Westmead is currently conducting a study which is seeking to understand how food allergy affects quality of life and how to better understand and measure the economic burden of changes in quality of life for food allergic children and their parents and carers.
If you are the parent or carer of a child aged 1-17 years with food allergy, please consider assisting us with this survey.
You can access the survey and questionnaires via this link: https://www.surveymonkey.com/r/qolfoodallergy
You will be asked a few simple questions regarding your child’s food allergy and then asked to complete three separated validated quality of life questionnaires- the FAQLQ-PF (30 questions), the CHU9D (9 questions) and the AQoL- 6D (6 questions). You will be answering on behalf of your child while completing the questionnaires to the best of your knowledge so try to imagine each scenario from your child’s viewpoint.
You will need to complete all three questionnaires for this survey. We anticipate this will take approximately 30 minutes to complete.
Data collected will be stored on a secure password protected hard drive in the Allergy & Immunology department at the Children’s Hospital at Westmead. All responses are de-identified and non re-identifiable, therefore data collected cannot be withdrawn following submission of the questionnaires.
Thank you for your participation.
Principal investigator: Prof Dianne Campbell, Children’s Hospital at Westmead 0298453366
Study investigator: A/Prof Gang Chen, Monash University
This project has been approved by Sydney Children’s Hospitals Network Human Research Ethics Committee. If you have any concerns about the conduct of this study, please do not hesitate to contact the Executive Officer of the Ethics Committee (02 9845 3066) and quote approval number 2019/ETH00677.
If this survey raises any specific concerns or anxieties Allergy & Anaphylaxis Australia have an information and advice line: 1300 728 000
Content created 4 October 2019